Inspire

25-year Old Woman Now Living Rather Than Just Existing

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A 25-year-old Aberdeenshire woman has said she is now living rather than just existing, one year after getting a delayed cystic fibrosis drug.

Hailey Mann, from Westhill, had been advised to make end-of-life preparations as her condition worsened.

She said there were “tears of joy” when the drug was approved for her to start using last year.

The beauty therapist said her life had been transformed and she was now living it to the full.

Ms Mann said at the time that an agreement had been made with the pharmaceutical company which manufactures Kaftrio to make the medicine available to her on compassionate grounds.

The licensing of the drug in Scotland had been delayed by the Covid-19 pandemic, but was then approved for use.

BBC

August 21, 2021

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